So a bunch of organs walk into my body and sit down at the bar.
- A bunch of my organs hanging out
They talk amongst themselves about who is the most worthless and which one I could do without. Colon gets pissed off because its decided that hes the one thats got to go. So right before he leaves…he gets all belligerent and wreaks havoc on my bar.
Ok that was horrible. What I’m trying to say here is that though the finish line is wicked close…I feel worse than ever. I can’t decide if I’m legitimately feeling awful or its just a mental battle knowing its only 24 days away. The last few weeks have been miserable. Mega miserable. In fact miserable deserves a capital “M”. I’m nauseous all the time, today I’m dry heaving stomach acid. Over the weekend I had fevers again. I’m just tired of it all. So tired of being sick, and complaining about being sick.
- Farewell old friend
I’ve also begun mourning my future losses.
Nope, not the loss of a major organ, but the loss of popcorn.
I adore popcorn, and it seems as though my love for its buttery popped goodness will have to be a thing of the past. How depressing.
Hi there…just to let you know, and to reassure you- I had my colon removed last year, had the bag, got reconnected without a j pouch (mistake) – dont know why my surgeon did that… got a new surgeon and due to have my ileostomy back next week….. then I will think about the Jpouch option….
Well thats me so far- but my point being that the last four months of being badly reconnected have reminded me of what UC was like. While I had the bag I had full quality of life. The only problem for me was the psychological aspect of the bag, but having had such an awful reconnection this time I am not at all freaked out or disgusted at the prospect of returning to it as I have experienced something worse. This disease makes you forget what it is like to have a normal life and you start to expect less and less and hold on to your rotten colon like a bad abusive relationship. Once you get rid of it believe me you will be SO happy bag or no bag. It takes time to adapt and it takes time to not feel sad but people with stomas have sex, love, work, travel, adventure, family and friends- I guess that what we lose are the superficial friendships and relationships- no hardships there! Given the ballsy and honest nature of your blog I am 100% sure that once you get well again you will embrace this…. I wish you all the best with your upcoming surgery… oh and by the way- when I had my stoma last time I definitely ate popcorn! Graeme
I have never read a blog before, but I came upon yours while I was looking for other people “like me”. I just wanted to wish you the best with your surgery.
I have also had my colon removed; all but about 6-8″ and I do not have a bag, but I too still eat popcorn! It’s just one of those things that you can’t live without!
Good Luck!
Katie
Katie,
I don’t know if I could live without blogs! Honestly, after both of my diagnoses blogs were one of the only things that helped me! Thank god for the internet! If you need any other good resources for people “like us” just let me know!! Thanks for reading!
Hi Jackie,
Any resources would be great! I tend to put things off, but I really could use reading about, and talking to people with similar ‘intestinal issues’. Any help you could give I would be appreciated!
Thanks-
Katie
Katie,
The links I have posted on the top right up there about the Jpouch sites are some of the most amazing sites and places that I have found great support.
I’m not sure what your health history is, and since you didn’t have your whole colon removed, the jpouch sites might not be the exact help you need, but there is a lot of good info on there from many different people with different stories.
Good Luck,
oh also the Cleveland Clinic’s website has TONS of great info.
Thank you so much! I will start looking at those as soon as I get a chance.