Well recovery from this surgery is moving slow. Really obnoxiously slow, mostly due to the giant hole I have in my incision that won’t heal. I get close with a big scab and then some how it gets ripped off…hence why I asked for stitches.
Anyway. First and foremost. I am down to 169 lbs. Which is probably from just not eating. But I’m trying, I’m just never hungry. Its kind of a mind fuck because I want to eat because you’re supposed to, but I’m not hungry and I’ve got to lose weight. Before I get all your lecture on how I have to eat…I know. I’m trying…thanks mom.
Anyway. Lets talk Stomas. Mine…this new one..is a real bastard. I didn’t name it cause I hate it. Its sooo damn loud and I dont know why. Like constant loud. Its super attractive. So not only do I wear my butthole on my stomach…I also hear it all the time. Its the worst show and tell ever.
IĀ also have this weirdo pain that comes and goes right around where my drain tube used to be. Sometimes I wish I lived closer to CC so I could just run on over for a check up, instead Im afraid like my insides are eating their way out and the stoma is their leader barking commands.
Also…someone found my blog by searching “cowgirl butt poo”.
I feel honored.
I hear ya on the slow-healing-incision issue. I thought my incisions would never close. But then I found this stuff:
http://www.amazon.com/TriDERMA-Intense-Fast-Healing-Cream/dp/B000P3DN38/ref=sr_1_1?ie=UTF8&s=hpc&qid=1285174281&sr=8-1
I highly recommend it! My 3rd surgery was being delayed because he wanted my incision to heal first. Well, once I bought this stuff, it healed more in 10 days than it had healed in the prior 6 months.
Congrats on the weight loss – although I agree with your mom – you have to still eat! Keep your protein intake high – that’ll help you heal faster. Maybe try protein shakes? And Zinc is good too (try Multi-Grain cheerios maybe, that has a good portion of zinc in it).
I am currently sitting in a hospital bed, 7 days away from possible surgery to remove my colon. I’d like to just say thank you for giving people a real persons view on these problems. I’ve been using my newly found spare time, between tests and nurse visits, to study up on my newly acquired badge of UC ownership, and the majority are boring, scientific, hard facts that leave a lot to the imagination. So again, thank you for giving a human side to these problems š
Candance,
Welcome to the club…well almost welcome. I must say, honestly, the first surgery was one of the best things I did. Its sucked since then, but after the first one and the recovery my life was restore. I had my surgery less than a year after diagnosis, so I know what its like to try to deal with it all at the same time. Where are you have your surgeries? How many steps? All the usual jazz?
Keep me posted on how everything goes, and if you need to just email and whatnot let me know.
Also I appreciate your comments as much as you appreciate the blog. The blog is easy, I just say what I think a lot…commenting is the cool part of it all.
Good luck..and seriously let me know how it goes.
f’ing incisions and loud “aliens”… that is what i called my stoma. My 2nd alien was a loop ileostomy and that damn thing would go off if i moved wrong. Really great in the middle of a meeting at work. I am so glad it is gone… you will get there! So I had a mucus fistula (an addition butt hole off to the side and down from the stoma after my first surgery… hubbie called me a perfect asshole since I technically had three at that time. the fistula was to prevent a rectal stump explosion… never really did understand it’s purpose besides being a total PITA. Surgeon closed it up after the 2nd surgery but it never really healed right, so she revised it with 3rd surgery. To this day I still bandage it b/c it burst open again. I guess this will require ANOTHER trip to OR in a year. aaaaggggHHHH!! The former alien site was left as an open wound to heal and close on it’s own after take down… still not closed all the way and we are going on 3 months in October since last surgery. I have been placing bandages and/or poop bags on my stomach since Dec ’09. Don’t get me wrong – I am extremely grateful to the alien for saving my life but I am tired of dealing with and thinking about poop, bandages and wounds/incisions. Even cured from UC I am still obsessed with poop. Will that never stop??
Good job on the weight loss. I have been amazed at how much prednisone weight I lost after #3 and how the new ass seems to keep the weight off!!! Yea!
Jackie,
You say the things I wish I could so many times! Thank you for putting it all out there. I too wish I was closer to CC but for now I am working with Dr Turgeon at U of M. She is great and I did 8 weeks pelvic floor rehab to see if we could stop this incontinence which I wouldn’t have been able to do through CC due to the distance. I also have chronic pouchitis~right now I hate my ‘J’!!! I am thinking of going back to my ileo. Oh, I didn’t mention that my pouch twisted…I had it untwisted…what a pain in my butt š The loop is horrible though, I hope you don’t have to have it too much longer.
You are in MI right?
Sarah
Hey Sarah,
Is Dr Turgeon a GI, or surgeon or something? I’m looking for a GI but I’ve seen so many bad ones, I’m only going to a recommendation now.
I have a friend who has had her pouch twist like times, and all sorts of other jazz. Shes also considering going back to an ileo. If you want I can get you in touch with her.
I am in michigan, Livonia. Where are you?
-Jackie
So it has taken me this long to respond to your response~ nice! Sorry for the lapse of time. I am glad you are getting to travel with the ostomy. I did use that ‘moldable’ wafer once and hated it to. I did like convatec though. I hated hollister. If only I could come up with something that worked well and was comfortable I could be rich!!!
Dr Turgeon is a GI not a surgeon out of U of M. She sees pt.’s in Saline only and inpatient. I really like her because she listens to me and remembers stuff we talked about months/weeks before. She is willing to try different approaches to my pouchitis/UC but is not afraid to tell me I might be approaching the end of the J shaped rope. (I am really sensitive to most of the drugs to treat pouchitis and UC)
Anyway, I am in Howell. Sarah