I went back and started reading some older posts from before my first surgery. I’m kinda hilarious. But anyhoo, I came across this entry. I was talking about my normal, and the “what if’s” of surgery. I wrote this at the end:
What if the recovery is WAY harder than I expect?
What if my pouch fails and I’m stuck with a permanent bag?
What if I regret my decision?
Why is it never…”what if this is the best decision I’ll ever make?”
I’m hoping that this will be the best thing I do for myself, because I can’t picture a lifetime of my “normal”. Its just getting to be too much to take.
I stopped right there and had to blog this right away. I recently was writing out my xmas cards and the insert about my year for friends and family. I literally wrote this word for word:
After my first surgery, life changed. It changed in a few really awful ways, but mostly in really amazing ways. I was happier, healthier, had more energy and could really live my life again. In hindsight, that surgery was the best decision I ever made.
No matter how much I read, or talked to other people, I NEVER would have believed I would have ever said that. But its true. So if I don’t get a chance to blog before the holiday, I hope you all have a great holiday. And that you remember that many of us have lots of shit to deal with, that we’re all doing it for a better life. I’m still trying to create my new “normal”. And I do believe I will get there some day, because I have also learned that “normal” changes from one chapter in our lives to another.
Wow – just found you and I’m so glad! I’m max’d out on meds and the UC is winning – I’m probably facing colectomy within the next month – meet with the surgeon on Tuesday. I feel like I could be your twin and you’ve already written down everything I’m feeling and going though. So so good to read your words – and I love your humor! Thank you for writing your blog! Amy
Hi Amy,
Thanks for your comment. I think that you’ll find that most people, are happy they decided to have the surgeries. Its a huge decision, but you’ll look back on it and think it was a no brainer. I often wonder what the hell I was waiting for because my life was no way to live before.
Good luck.
-Jackie