My Blog
The Patient Advocacy Circle of Life
I saw a Twitter thread recently from a friend and fellow advocate who was wondering what his future in patient advocacy looked like. I've seen these types of threads a lot over the years and I understand...I've been there. Maybe it's the new set of Lion King socks I...
MS Buddy App: A unique approach to patient community apps
There are a lot of apps out there for patients...and I mean A LOT. There's a boatload of different apps out there designed to make a patient's life easier by collecting data or helping them track symptoms. If we're being honest, and we are, I haven't used any of...
Reflecting on a Decade of Ulcerative Colitis
Recently another one of those 10-year challenge things was floating around Facebook and when I started thinking about what I was doing at this time 10 years ago my heart sank.
9 Ways to Find Support for MS in Rural Communities
We live in a wonderful time where most people have access to endless amounts of information and support. However, if you live in a rural area, you may struggle to find local resources. Here is a list for you! I have compiled resources designed for people with limited...
Dear Adam: A letter from your chronically ill wife
In the last few months, I've been writing a letter series for HealthCentral, and my article for this month was a letter to the spouse of someone living with UC. It just so happens this past week I had the immense honor of marrying my best friend, Adam. I started to...
Reassessing Your Career When You Live With Chronic Illness
From a young age, I have measured my value in my accomplishments. Right or wrong, I have discovered this pattern, and I can see it weaving in and out of different stages of my life until we get to this point where I’m almost 34 and starting to consider how much longer...
What to Expect at Your Ocrevus Infusion
Ocrevus (ocrelizumab) was approved as a new treatment for Multiple Sclerosis in March of 2017. It is an infusion that patients have every six months, aside from the first two doses (which are one-half, two weeks apart). As one of the hot new medications on the market,...
How to Talk to Your Friends About Your Ulcerative Colitis
Living with a diagnosis of ulcerative colitis (UC), a form of inflammatory bowel disease (IBD), can lead to a lot of embarrassment and, in turn, isolation. That’s why it’s important to keep your support network intact. But sometimes, talking to your friends can be...
Dear Society: A Letter From an Ulcerative Colitis Patient
Dear Modern Society, I bet you’re tired of getting letters by now, aren’t you? It seems as though everyday there’s a new letter to the world, telling us how ill-informed we are on endless topics. This will not be that type of letter. Though I do hope we can all agree...
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